Date of Award

2016

Document type

Thesis

Degree Name

PhD (Doctor of Philosophy)

First Supervisor

Dr Elaine Byrne

Second Supervisor

Professor Mary McCarron

Third Supervisor

Professor Philip McCallion

Funder/Sponsor

Health Research Board of Ireland

Keywords

Intellectual Disability, Aged, Living Arrangements

Abstract

The study aims to understand if and how older people with an intellectual disability are involved in the decision to change place of residence, the relationship between this choice opportunity and choice in other areas of life and how both choice and moving impact on health service utilisation.

National policy promotes the closure of congregated living for people with ID. For people who live with family, longer life expectancy presents different challenges in preparing for later life living arrangements. This context provides strong rationale for current study.

The research design consists of three main elements; (i) a content analysis of relevant health and housing policies; (ii) a systematic review of healthcare utilisation models; and (iii) quantitative analysis of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)

The data analysis showed three types of moves made by IDS-TILDA participants – more restrictive, more community based and lateral moves (which represented the majority). The main drivers for change differed by type of move but the predominant stakeholder in these decisions was the ID service provider.

In conclusion, the duality of home and health for people with ID was evidenced across the various elements of the analysis with the quantitative analysis demonstrating that people with ID continue to be excluded from decisions on major life events and transition points such as moving home, and that regardless of type of living arrangement and type of moves made by movers, that many older people with ID continue to have choice for everyday and key life decisions made by someone else. This has implications for future health and housing policy and the need for complementarity in policy development and implementation.

Creative Commons License

Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 4.0 License.

File Size

7.54 MB

Comments

A thesis submitted for the degree of Doctor of Philosophy from the Royal College of Surgeons in Ireland in 2016.

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